Norwegian Childhood Cancer Registry
The Norwegian Childhood Cancer Registry registers cancer in children under the age of 18. The registry has existed since 1985 and the Cancer Registry of Norway is responsible for data processing. Few children get cancer in Norway each year, which can be a challenge for research on treatment effects.
There is extensive cooperation in the Nordic countries and internationally between the academic communities to improve the situation for children who get cancer. We are now seeing improved assessment and treatment and an ever-improving registration of almost all cases of cancer in children and adolescents in the Norwegian Childhood Cancer Registry.
The purpose of the registry is to contribute to strengthening the quality of the health care provided to children with cancer. The quality registry shall also conduct, promote and provide a basis for research to develop new knowledge about the causes, diagnosis and course of cancer, as well as treatment effects, including late effects of treatment.
For more information about childhood cancer, see the Norwegian Cancer Society´s pages about different types of cancer and the Norwegian Childhood Cancer Society's website
Registration to the register
Registration of clinical information to the Norwegian Childhood Cancer Registry is done electronically via KREMT on the Norwegian Health Network. KREMT has functions to make the work with reporting easier.
Reminders for missing messages and receipts for submitted messages are available in the KREMT portal. It is also possible to cache forms.
To encourage reporting, administrative and clinical statistics have been compiled that provide hospitals with updated results for their unit. These statistics are updated daily.
All children and adolescents under the age of 18 diagnosed with a cancer diag-nose must be included in the Norwegian Childhood Cancer Registry. The registry contains detailed information on cases of cancer registered according to the classification system ICCC3 (International Classification of Childhood Cancer).
The Norwegian Childhood Cancer Registry registers information on assessment, treatment and follow-up of this patient group. The treatment differs between the different diagnoses, but often includes different combinations of chemotherapy, surgery and radiation therapy.
Cancer in children is assessed, treated and followed up at the regional hospitals. All doctors who provide health care to children with cancer are obliged to report to the Cancer Registry, which includes the Norwegian Childhood Cancer Registry.