Norwegian Breast Cancer Registry
The Cancer Registry of Norway cooperates closely with clinicians, health trusts and pathology laboratories to create legitimacy and support in the national clinical communities in the work on the quality registry. This cooperation is safeguarded by the establishment of a professional council in the Norwegian Breast Cancer Registry with representatives from different regions and medical disciplines. The Cancer Registry of Norway is responsible for data processing.
Following up this patient group in a quality registry can help to map whether changes in national guidelines for diagnosis and treatment of breast cancer are followed up, and to evaluate the effect of the measures implemented. The results that emerge may in turn lead to changes in treatment programs with the goal of maximum cure and disease control, and to minimize the burden of the disease and treatment, as well as reduce late effects.
Norwegian Breast Cancer Registry at kvalitetsregistre.no
Facts about breast cancer on kreftregisteret.no
Registration to the register
Registration of clinical information to the Norwegian Breast Cancer Registry is done electronically via KREMT on the Norwegian Health Network. KREMT has functions to make the work with reporting easier.
Reminders for missing messages and receipts for submitted messages are available in the KREMT portal. It is also possible to cache forms.
To encourage reporting, administrative and clinical statistics have been compiled that provide hospitals with updated results for their unit. These statistics are updated daily.
Degree of coverage and data quality
Patient group
The registry contains detailed information on all cases of breast cancer (ICD10 C50) and information from assessment, treatment and follow-up of this patient group. Breast cancer is treated with various combinations of surgery, hormone therapy, chemotherapy and radiation therapy.
There has been a significant development and improvement in the diagnosis and treatment of breast cancer, which has led to more and more women living after breast cancer diagnosis. At the same time, the complexity of diagnostics and treatment has increased, and many of the measures are costly. Side effects, including late-side effects of treatment are a challenge.
Treating devices
Breast cancer patients are assessed, treated and followed up in both the primary health service and the specialist health service. All doctors who provide health care to patients with breast cancer are obliged to report to the Cancer Registry, which includes the Norwegian Breast Cancer Registry.
Findings (Norwegian only)
