Course of disease in bladder cancer patients
Last updated: 05/01/2021
Background and purpose
The study is based on all bladder cancer patients diagnosed from 1996 to 2016 and describes the further course of illness for these patients after the first bladder cancer diagnosis. This study therefore has a cohort design.
We link data from the Cancer Registry, the Cause of Death Registry and the Norwegian Patient Registry (2008-2016), and in this way we can find out when patients have been diagnosed with bladder cancer for the first time, details about the cancer diagnosis, whether they have received treatment (and which one), how often they have been checked up and what the result was.
We also have the opportunity to investigate whether there is a connection between bladder cancer and other diseases later in life.
An important advantage of this project is increased knowledge about the course of the disease in a bladder cancer diagnosis. This may have direct or indirect consequences for a more personalised treatment or follow-up strategy for bladder cancer patients in the future.
The societal benefit is thus great because the results can lead to a better adapted follow-up and treatment of bladder cancer patients.
Participant information
The project is based on register data, and we will not be in direct contact with the participants. Participation does not imply any active action on the part of the individual patient. Thus, it will not cause any harm or burden to the patients included in the study.
All information is processed without name and national identity number or other directly recognizable information. A code links the individual patient to their information through a list of names.
Only authorised personnel associated with the project have access to the list of names and can find the individual patient.
It will not be possible to identify individuals in the results of the study when these are published.
Information letter about the right of reservation (Norwegian only)
Subproject
1) The primary objective of this sub-project is to evaluate and improve treatment and follow-up of patients with stage T1 bladder cancer in Norway (PhD student: Augun Blindheim).
2) The primary purpose of this sub-project is to evaluate and improve the treatment and follow-up of patients with muscle-infiltrating bladder cancer in Norway (PhD student: Christina Tanem Møller). Read more about the project here.
In the media
The Norwegian Cancer Society - "More buzz about bladder cancer" (Norwegian only)
Aftenposten - "Why does everyone shut up about bladder cancer" (Norwegian only)
kk.no - "There is little talk about and little research on bladder cancer (Norwegian only)
Forskning.no – "Why bladder cancer may be more deadly for women" (Norwegian only)
The journal "Sex differences in bladder cancer survival"
Publications
T1 bladder cancer in Norway: treatment and survival
Scand J Urol, 54(5), 370-375
doi 10.1080/21681805.2020.1803401, PubMed 32783590
Health-related quality-of-life after radical cystectomy among Norwegian men and women compared to the general population
Scand J Urol, 54(3), 181-187
doi 10.1080 /21681805.2020.1754906, PubMed 32343159
Lifestyle associated factors and risk of urinary bladder cancer: A prospective cohort study from Norway
Cancer Med, 9( 12), 4420-4432
doi 10.1002/cam4.3060, PubMed 32319230
Bladder cancer survival: Women better off in the long run
Eur J Cancer, 95, 52-58
doi 10.1016/j.ejca.2018.03.001, PubMed 29635144
Vitamin D, obesity and leptin in relation to bladder cancer incidence and survival: prospective protocol study
BMJ Open, 8 (3), e019309
doi 10.1136/bmjopen-2017-019309, PubMed 29602840
Crude mortality and loss of life expectancy of patients diagnosed with urothelial carcinoma of the urinary bladder in Norway
Scand J Urol, 51( 1), 38-43
doi 10.1080/21681805.2016.1271354, PubMed 28084860
Incidence and Survival of urothelial carcinoma of the urinary bladder in Norway 1981-2014
BMC Cancer, 16( 1), 799
doi 10.1186/s12885-016-2832-x, PubMed 27737647
