The Cancer Registry of Norway- strategy 2020-2024

The strategy of the Cancer Registry of Norway for the period 2020-2024 describes how the Cancer Registry aims to contribute to reducing the cancer burden for each person individually, as well as for the society.

Vision

The Cancer Registry of Norway shall contribute to reducing the cancer burden, for each person individually, as well as for the society.

This is how the Cancer Registry of Norway works towards this vision:

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Prevention

Develop new knowledge on causes of cancer and cancer prevention
Provide evidence-based advice and information on cancer prevention
Evaluate prevention strategies

Early detection

Investigate different approaches for the early detection of cancer
Improve existing cancer screening programs
Establish new national colorectal cancer screening program
Further develop national and international expertise in cancer screening

Improvement of cancer care

Use Cancer Registry data for quality control and improvement of health services
Gain knowledge on cancer outcomes reported by patients and the long-term effects of cancer treatment

What does the Cancer Registry do?

We register all cancer cases in Norway
We make data and statistics available for planning, quality control, and research
We conduct epidemiological cancer research of high international quality
We manage, monitor, quality assure and further develop national cancer screening programs
We advise health authorities and the public on measures that can prevent cancer and reduce the cancer burden

Focus areas for 2020-2024

Research and methods

To explore personalized cancer prevention
To use new methods to eliminate cervical cancer
To apply machine learning methods in epidemiology and cancer screening
To use biobanks to identify new molecular markers
To identify inequities in cancer care

Infrastructure and dissemination

To facilitate automated reporting on the use of cancer drugs
To establish national colorectal cancer screening program
To include patient-reported outcome measures in all clinical registries
To communicate advice on cancer prevention
To make cancer data easily accessible to different user groups

Aims and focus areas by department/section

Department of Registration

To ensure at least 80% completeness of clinical reports to all quality registries
To establish a data extraction solution / data warehouse
To use patient-reported outcome measures in research projects

Department of Registry and Informatics

To provide a digital platform for secure data handling and efficient workflow

Department of Research

To focus on personalized cancer prevention
To conduct applied research on modificable risk factors for cancer
To explore molecular markers in cancer prevention using biobanks

Section of cervical cancer screening

To implement human papillomavirus screening nationally and etablish self-sampling options

Section of breast cancer screening

To contribute to increased knowledge about breast cancer screening, and implement that knowledge in the screening program

Section of colorectal cancer screening

To establish a national colorectal cancer screening program

Department of Administration

To contribute to keeping the Cancer Registry relevant and agile through the recruitment of highly competent researchers and professionals, as well as through the provision of necessary administrative support.

Criteria we depend on in order to succeed

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Proper competence

Preserve and establish new collaborations with internationally recognized research institutions
Create and maintain a community of leading researchers in the fields of cancer epidemiology, screening, and statistics
Obtain competence in new artificial intelligence and machine learning methods in cancer epidemiology

Accurate communication

Make registry statistics easily accessible and adapted to different user groups
Increase public knowledge about cancer and cancer prevention
Adapt advice and information to different groups of the public

Adequate funding

Secure sufficient funding from the national budget to ensure regular activities
Develope a strategy to secure additional funding from outside organizations or the national budget for:

- modernizing of the breast cancer screening program

- continous developement of quality registers

- additional research and projects

Interdisciplinary digitization

Establish a new information and technology platform for the screening programs
Ensure appropriate data flow, from the receipt of cancer notifications to the dissemination of data
Adapt internal data models to international standards
Migrate all cancer data to new information and technology platform
Develop a data warehouses