Declaration of Service
Registration
The overall goal of the Cancer Registry of Norway is to establish knowledge and disseminate knowledge that helps reduce cancer. All the country's doctors are required by law to report new cases of cancer to us. General practitioners and doctors at hospitals can obtain personal data about their patients. The registered person has the right to get information and access, cf. Section 5-1 of Kreftregisterforskriften.
The Cancer Registry's expertise in diagnostics and treatment is steadily increasing. Based on this, the Cancer Registry, in collaboration with the clinical community in Norway, has over the past 20 years purposefully developed national quality registries for the treatment of cancer.
Research
Information from the Cancer Registry of Norway's database is largely used for research. If you wish to initiate surveys based on data from the Cancer Registry of Norway's database, the projects must be assessed by our research managers and by the ethics committee. Funding must be obtained, and exemption from the duty of confidentiality from Helsetilsynet and a licence from Datatilsynet must be available.
Information
The Cancer Registry of Norway disseminates its knowledge about the cancer situation in Norway through, among other things, statistical overviews online and in Cancer in Norway, annual reports, scientific articles, lectures, news on the website and press releases.
The Cancer Registry of Norway receives a large number of inquiries from different environments. When inquiring about cancer incidence, information is retrieved from reports and publications or by extraction from a separate database, which is very often necessary. The Data Disclosure Unit assists with the latter.
Inquiries to the Cancer Registry of Norway are answered as quickly as possible, and everyone receives feedback within 14 days. The Data Disclosure Unit shall provide cancer registry data within 30 days. Information in the Cancer Registry of Norway that must be collated (linked) with information in other health registries must be provided within 60 days (see Kreftregisterforskriften, chapter 3). However, the average delivery time is around two weeks.
When assessing disease risk in families , genetic departments can obtain information about deceased relatives' cancer diagnoses.
